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Showing posts with label Memoirs. Show all posts
Showing posts with label Memoirs. Show all posts

Wednesday, May 28, 2014

Becoming Mrs. Rogers: Learning to Live the Fragile X Way


We are so excited to announce that Cindi Rogers first book, Becoming Mrs. Rogers is now available! This book was a labor of love for Cindi, as well as her husband, Chris.  The process has been a wonderful learning experience and going forward will continue to require more learning.

This book is a memoir of sorts about her life (and Chris') in dealing with the birth and subsequent diagnosis of fragile X syndrome for their two boys. The timeline travels from birth to present day and covers lots of different issues like school, behavior, therapies and day-to-day life.  It will take you through some downs and eventually some ups, only to come out with moments of joy and hope.  It was an emotional journey for me while writing it, for Chris while reading it, and we hope for you, too. 

We also hope that you might consider reading it, and/or sharing it (forward this e-mail if you like) with others in your life that might benefit from such a story.


BOOK DESCRIPTION:


Becoming Mrs. Rogers is the true and heart-felt story of one couple’s journey into acceptance following a devastating genetic diagnosis for both of their sons. Their story, its highs and lows entwined with its wisdom and compassion, has been a beacon of hope for thousands of families struggling with fragile X and other autism spectrum disorders.

Fragile X is a common and inherited cause of learning difficulties, affecting a child's entire world, including social and behavioral problems as well as cognition and speech. Rogers not only tells her story, but also gives advice for new parents, sharing facts about…

* the physical and behavioral characteristics of Fragile X

* the effects of Fragile X on learning, functioning and daily activities

* medication and therapy

* how fragile X affects the family.

Cindi Rogers and her husband, Chris, share the perspectives and tools they embraced in order to help their boys be as happy and independent as they can possibly be. It is a story of challenges, tears, joy and hope.

**A portion of the proceeds of this book are donated to the Rogers Neighborhood FX Family Fund which in turn offers scholarships to the NFXF International bi-yearly FX Conferences.** 



ABOUT THE AUTHOR:

 
Cindi is the mother of two sons, ages 23 and 25, who are affected with fragile X syndrome and autism. Since receiving this diagnosis, Cindi has become a leader and symbol of hope within the fragile X community.  Her positive attitude, creativity and defining can-do attitude has inspired families and professionals worldwide. Cindi and her family have travelled to conferences around the world to present her innovative strategies, helping families not only to live with fragile X, but to also thrive. It has become her personal mission to share techniques to help families generate ideas that they can implement in their own world, while helping their children with fragile X syndrome to live happier, more independent lives. Today, Cindi serves on the board of directors for Developmental FX in Denver, a non-profit that helps families just like hers learn to thrive in the face of fragile X syndrome. She lives and works with her husband and two sons in Littleton, Colorado, and together they love travelling the U.S. in their RV named Rocket.


Connect with Cindi:




Find great website resources as well as bloggers to follow and enjoy! 






In 2013 the Rogers Neighborhood FX Family Fund sold t-shirts to raise money specifically for a scholarship to help families attend the bi-annual National Fragile X Foundation Conference.  These custom-designed t-shirts sold like hotcakes and we managed to raise $5500 to pay for hotel expenses for 11 individuals to go to that conference in July, 2014.  It has been our family's mission to help other families be able to obtain the incredible wealth of information we've had the privilege accessing throughout our years of involvement with fragile X syndrome.

Monday, April 14, 2014

Featured Book of the Week - My Soul to Keep


Each week authors can submit one book for a chance to be the featured book of the week, and each week one book/author will be selected at random. The winning book each week will be featured on http://www.malloryrock.com, multiple book blogs, and social media platforms from various sources.


WEEK OF APRIL 14TH WINNER FEATURE

Gracie Lea Silverwood

Author of the nonfiction memoir, My Soul to Keep

Book synopsis
Most little girls dream of tea parties and playing with dolls. Their biggest worry is making sure mommy or daddy chase the monsters out of their closets and out from under their bed. However what happens when your own mother is the monster, instead of the arms of love and safety? “My Soul to Keep” is the story of Gracie, a disabled little girl who, from day one, knew she was an unwanted child, just trying to survive and avoid her mother’s daily abuse. All the while, she struggled to hide her pain from the outside world.



Short author bio
A Note from Gracie...

Thank you for allowing me to be on your site! It has taken me 32 years to get to this point in my life to be comfortable enough to share my story, it was very nerve-wracking to write because even though I love writing I have never written anything for the public before. I am a stay at home mom who is wheelchair bound because I was born with cerebral palsy. I am originally from Canada, but now I reside with my husband and children in a small town in Kentucky.

- Gracie
You can visit Gracie on her  
website 
Facebook





Excerpt
“ It was also that summer I discovered what a daddy of my own really was, even though he
was technically my stepfather he never treated me as anything less than a biological daughter,
and I was a daddy’s girl through and through. Along with a new dad I also gained another big
brother whose name is Steve, and even though we only got to see Steve in the summers, he
immediately accepted me as a little sister and not just a step sibling. It was Steve who took
me on my first rollercoaster ride, when one weekend during a summer visit we went to Boblo
Island Amusement Park near Windsor; it’s one of my favorite childhood memories. In my eyes,
my daddy was my personal super hero, however, I also knew he was addicted to the same drugs
as my mother. Unlike my mother, he was never mean or abusive to me and he tried to be a
buffer when he could between me and my mother. She just learned to be more discreet about
her insults and “punishments” when daddy was around, well in the beginning anyway.”


Are you an author? Would you like your book to be the next Featured Book of the Week? Check out all the details and entry form here: http://www.malloryrock.com/promos.html